It's been a MUCH better day.
Elijah got eleven hours of sleep last night (only woke up once to snuggle – and then slept with mommy). We took the day off from the HBOT treatments, so the day was a lot more relaxed. Elijah got to take a nap at our temporary home with me (instead of in the chamber) and I didn't notice anything strange when he woke up from him nap.
So here's the deal…We've been talking to doctors to get their opinion about the startles. When I say "we", I really mean Andy. J He's called our neurologist and talked with our pediatrician and HBOT doctor. The consensus seems to be that while the startles could be seizures, they're probably not. The only way to know for sure is to have an EEG and it would be incredibly difficult (I think) to get Elijah to do the same thing while having an EEG.
One of the reasons the docs don't seem to be too concerned is that nothing is happening while Elijah is awake. He doesn't act strange at all after getting out of the chamber, he doesn't seem disoriented and he is acting like his normal happy-go-lucky self. Our plan is to start again with HBOT tomorrow, but slowly at a lower pressure. I don't feel that HBOT is hurting Elijah in any way. I go back and forth over whether or not I think what happened were seizures. Right now I'm thinking they're not, but even if they were seizures it's possible that it's just a result of his brain waking up, which is possibly not so bad after all. Maybe I'm just trying to make myself feel better.
We're always going to worry about seizures, because Elijah had them at birth, but I will continue to pray and hope that he never has them again. I know that God is looking out for us and will work everything out for the good.
BIG news from therapy today – Elijah drank from a straw! I am so, so excited. We've been working on this in speech therapy for the past two weeks and he just didn't understand that he needed to put his lips around the straw to drink – forget about sucking from the straw. Today, he not only got his lips around the straw, but he was able to suck and get something to drink. It'll take some more practice, but I can't help but envision my little guy grab a little cup and give himself a drink on his own. We will get there. But today, I got tears of joy in my eyes seeing him so proud of himself over his accomplishment of getting some apple juice out of a straw. What an amazing little boy we have.
Thanks so much for the comments, thoughts, and prayers everyone. It is so appreciated; I wish I had more time to talk to everyone. Today was a MUCH better day – tears of joy instead of tears of fear. Please continue to pray for our health and safety. Elijah's runny nose from yesterday seems to be gone, but now I'm sniffling. Thanks again.
Tuesday, March 17, 2009
It's been a MUCH better day.
Posted by Lisa at 10:47 PM