Thursday, July 22, 2010

Camping and the Continuing Adventures of Aqua Man - Part One

I think it's about time I shared some camping photos, don't you?

So what was Elijah's favorite part of camping this year? Playing in the WATER of course!
We got this floating donkey at Wal-Mart.  Elijah wasn't so sure about it at first, but once someone suggested Elijah sit in the donkey backwards so the floaty wasn't blocking his view (who designs these things anyway?) - he loved it. 
It was definitely worth the few dollars we spent on it! No jokes about donkey bums, okay? ;) 
Elijah was excited to see the dam.  
Really excited...
He wanted to touch it.
No jokes about dams, either, okay?
Three generations.  Aren't they handsome? :)
Hmm, I have more photos, but this is already getting long.  Part two coming soon...

Monday, July 19, 2010

We're Baaack!

Um, from where exactly?

From a week of camping, of course!  I'm trying to dig us out from Mount Washmore and trying to keep little man entertained now that we're back home (and not outside 24/7).

I just wanted to let you all know what we've been up to this past week.  I plan to (hopefully) download pictures soon and share some here.  Stay tuned.

Friday, July 9, 2010

Living it Twice

I came across this quote by Michael J. Fox recently and it struck a chord with me.  It's from his book, A Funny Thing Happened on the Way to the Future: Twists and Turns and Lessons Learned.  I haven't read his book, but I think I should.  I bet I'd like it.

Don't spend a lot of time imagining the worst case scenario.  It rarely goes down as you imagine it will and if by some fluke it does, you will have lived it twice.
Isn't that so true?  I think worrying comes with the territory when you're the parent of a kid with special needs.  There are no guarantees for the future - for health, for self-care, for cognition, sometimes even for life itself.  But, are there any guarantees for any of us? Of course not.  What good is it to worry?  I believe happiness is a choice and sometimes I have to choose to be happy.  Stressing about Elijah's future isn't good for any of us.  Besides, I'd rather live the good moments twice, wouldn't you?

Wednesday, June 30, 2010

I'm Not Used to Talking to Children

When I hear kids talk, I'm kind of blown away.  Obviously, my only experience in parenting has been of a child who doesn't talk at all.  He's noisy. And he's said my name before.  He's even said "I love you"!  But mostly, our home is pretty quiet.  In my reality, almost-three-year-olds don't talk.  So when I hear small children talking, I almost want to stare at them in disbelief, like they're some sort of phenomenon.  I want to point at them and say to the person standing next to me, "Woah, did you just hear that?  That kid just said something! We should alert the media; they're going to want to know about this!"  It's amazing to me.  The more I learn about speech, the more I am amazed that any of us are able to talk.  Truly.  It's a miracle any of us are able to speak.

I've been noticing that other kids are noticing Elijah's differences now.  When he was smaller, they didn't pay as much attention to the drool or how he doesn't always respond when they try to engage him.  But, now, they notice.  I see kids looking at him, wondering.

They're starting to ask questions.

Not too long ago the neighbor kids started to ask me questions about Elijah.

Neighbor girl, "He drools a lot."
Me, "Yes, he does."
Neighbor girl, "Why?"
Before I could answer, she asked another question.  I was relieved; it was an easier question to answer.
Girl: "What's that on his bike?"
Me, "That's something to help Elijah keep his feet on the pedals.  He doesn't really need it anymore because he keeps his feet on all by himself.  He's just learning how to push the pedals by himself, isn't that great?!"

A little later, Elijah tried to get in one of the neighbor's swimming pools, again.
Girl, "Why don't you just let him get in?"
Me: "It's almost lunch and I don't want him to get wet right now."
Girl: "You could just change his clothes you know."
Me: "I know, but right now just isn't the right time to go swimming. And Elijah can't always get his way just because he wants something."
Why, oh why, am I arguing with a six year old?


Soon, Elijah spits up some of his morning snack.

Me: "Whoops!" as I wipe off his face with his shirt since I have nothing else.
Girl: "What's that?"
Me: "He just spit-up a little."
Girl: "What is spit-up?"
Me: "Oh, it's uh, throw-up." (How do you put that nicely, so that they understand?)
Girls: All react disgusted in different ways.
Me: "It's okay, Elijah's tummy just doesn't keep his food down as other kids.  Here, we'll just take some water from the pool to wash it away."
The girls seem satisfied. Thinking that they might associate throwing-up with being sick, I tell them Elijah's not sick or anything.  It's just that sometimes his food just comes back up. No big deal.
Girl: "Oh, you should take him to the hospital."
Sigh.  I am just not used to talking to kids.

I'm glad the kids are asking questions.  Really, I am.  We live in a fantastic neighborhood, with respectful children.  Elijah likes to be with them, so they're going to have questions.  I'd like them to get to know him, be protecting of him as he gets older.  It's just that kids ask "why?" a lot...and sometimes that's a hard question for me to even have the answer.  I don't know why Elijah behaves the way he does at times.  I'm going to have to get used to answering these questions.  I so want to have the right answers, to be able to explain things in a way that they can understand.

I ache for them to accept Elijah as one of their peers.  For the most part, they do.  I just need to wrap my mind around children and their questions.  And I need to be ready with an answer, as hard as the answers may be sometimes.  The way I respond has a big impact.  My answers are what will enable them to accept Elijah and will educate them about kids with disabilities.  It's important that I remain positive in my responses.  Having the right answers does stress me out a little.   I am just not used to talking to children!

Sunday, June 27, 2010

How to be a Superhero

I think Aqua Man, er, I mean Elijah, likes our sprinkler. Want to appreciate a sprinkler like a Superhero?
First, you must test the water.
Then, you can jump right in.
Next, stick your face right in the water.  Trust him, just do it!
Finally, run around with glee.  Don't worry if your swim pants start falling down...it happens to the best of us.
Start thinking about your next adventure.
Job Well Done.  Maybe you can be an Aqua Man too!