Wednesday, December 30, 2009

Blue Sky July

Upon a recommendation from the Kidz Krew, I recently read a memoir entitled Blue Sky July: A Mother's Story of Hope and Healing, by Nia Wyn. Nia's story really resonated with me and I was able to read the book within a couple of days. Her words paint the story of her journey through her son Joe's first seven years (who has severe cerebral palsy), told in a style which is more like poetry than a memoir. Honestly, I've never read anything quite like it.

More than anything, it's a story about a mother's love and the lengths a mother will go through to give her child the best life possible.

This quote really stuck out to me and I loved it so much that I folded the corner of the page where these words were written (please don't tell the library, ha!):
As we pass the running children who hold up their heads so easily, I realize miracles are so commonplace we barely recognize them anymore,
and near the circles of mothers who anxiously comparing milestones at the
school gates, I see how we live in a time where normal is never enough,
and we are never full.

Joe gives me insights I could never have understood without him, and he gives me
heartbreak.
To separate these two responses would be impossible. He is
equally beautiful and equally terrifying
(pg. 42).
So beautifully written. Miracles are all around us and we can't even see them most of the time. Be the one to see them.

7 comments:

Dennis said...

My dear Lisa,
I too, as Elijah's Grandpa am so much more aware of quote "normal life" and the normal activity of children taken for granted by most. If we were not put in this world of special need kids,we would not understand either.

Recently I was walking through the child play area in a local mall watching (mostly mothers) and their young children interacting.
I have to admit I got very emotional. I was wondering if the young Moms really appreciated their children.

Elijah is so special and is a wonderful teacher for us.
I am so happy to see his continued growth.

You and Andy have worked so hard to make him be all that he can be.
As we know, God is the ultimate healer and I know he hears our prayers.

Love Dad

Kathy Lausted said...

Lisa,
I remember going to the zoo last summer. There were a few children running around enjoying everything. Elijah and I were walking up a small flight of stairs. A couple of children ran down in a blur of activity. It happened so fast. But in that split second Elijah raised his hand to say hello. It left an impression on me. Of course, the other children did not realize what Elijah was doing. That was his way. And they had their way. He is such a sweatheart. Love wells up in my heart for him. I love you and Andy, too. Love, MomKat/GramKat

Jennifer Thayer said...

I ordered the book last night! Thanks, Lisa! I am a big reader and can't wait.

The paragraph that you share hit home for me. Bryan and I always gaze at other babies in the mall, at church, at ECFE class and say, "show-offs!- Look how easy they hold their heads up!"
As a mom to King Roa, I look at development as a true miracle!
Thanks for sharing! Jennifer

therextras said...

Wow, Lisa, this is a good one to share! Thanks so much. Must put this book on my list (STACK) to explore! Well, perhaps you will not mind if I link to this post in my next one? ;) I didn't think you would. Barbara

PS - I just saw the little video of Elijah playing with a cloth - very cute! But I was also wondering if you are considering trying a booster chair yet? He looks big enough.

Anonymous said...

I started reading your diary when a year ago our grand daughter was born and she was not breathing. She survived and I did an internet search on oxygen depravation. Your site was one that came up. I have since been reading it and went back to the beginning to learn your story. I feel as though you are a member of my family. Kylee's doctors also gave such gloom and doom predictions each time she went to the doctor. Even though they could not pinpoint anything specific, they always had to make sure we knew what could and probably would be. Well, she is now a year old , has had physical therapy and is now in speech and she is doing well. We are so thankful. For a long time when I was with her, I would be watching for signs of something "wrong." And then I thought , what is the definition of "wrong." We all have " something." Maybe we need glasses or have crooked teeth that need braces. It is what is inside that counts. We do have a handicapped nephew and he has taught us so much. You are always in my prayers. Tess...from Jim Falls.

Lisa said...

Mom and Dad, I sure love you guys! Thanks for each and every comment you leave here in Elijahland. It means a lot to me. I enjoy your stories and know just how blessed we are to have four grandparents in Elijah's life who love and care for him.

Jennifer, I hope you're enjoying Blue Sky July!

Barbara- Of course I wouldn't mind. Thanks for your link to Elijahland. And, yes, we've been thinking of alternative options for seating. I really need to get on the ball and get something different for him.

Tess, thanks so much for writing! It's always nice to hear from people who read this blog. Glad to hear that Kylee is doing so well. And you're right, we all have "something", there is no such thing as "normal." It was nice to hear from you.

Murzelmom said...

So that's why Yara went to NICU without any injury:

For me to take in that she's a miracle.

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